Amanda’s cycling to Rio

Hola!
I’m now on my way home after spending 6 days in Spain. We’ve just lifted off Bilbao for Munich then it’ll be two long haul flights back to NZ.
So what was I doing in Spain? To keep a long story short, my reserve pilot Kirstie James needed to race in a UCI para-cycling world cup to be eligible to race at Rio if she was to be called up (ie if my main pilot, Hannah van Kampen gets injured and can’t race with me or if she called up to be a reserve for our another stoker), and the cut-off date to get Kirstie qualified was when the last round of para-cycling world cup was to be on..Cochlear implant recipient, Amanda Cameron. Paralympics

 

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So Stu (coach), Kirstie and I headed to Bilbao, an old city north of Spain near the border so there are mountains surrounding the area which was pretty. It was where the final UCI Para-cycling Road World Cup before Rio was to be held. Exciting!!
As the purpose of the trip was a simple one, it meant the trip would be short as we had a tight turnaround to get back home and focus on training on track (which is my target at Rio). Kirstie and I were due to race in three days after arrival but disaster struck and our luggage didn’t arrive with us! Lucky I always make sure to have everything for few days in my carry-on luggage… Including charged and disposable batteries!)

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It was a nervous wait for us but my single bike and the tandem finally arrived the day before racing. Half our luggage was still missing and it meant we didn’t have wind-trainers, tools or disc wheels but at least we could race.
Despite me not having a lot of focus on road racing, we finished 6th in the 21km time trial and 7th in the 70km road race, both results I’m really pleased with. It was also Kirstie’s first two tandem races after having only taken up piloting little over a month ago.
In between racing, the three of us got to do a little sight seeing and relaxation. Even when you’re busy or anxious, it’s important to take some time out and enjoy the scenery around you. As I’m a nervous person, I often have to be reminded to breathe and be in the moment. This is a cool short clip with captions (only about a minute long) on meditation. This is something I do often, especially when nervous or stressed (like before a race!) but it’s great to do every moment you can.Meditation – The Huffington Post
Anyway, nearly at Munich! I will write another update soon.

Adiós!

From Amanda Cameron.

Megan’s inspiring story

Megan was born profoundly deaf, but that wasn’t going to hold her back from her swimming dreams. Megan swam in the 2000 Paralympics.

Five years ago, Megan received a Cochlear™ implant and now enjoys hearing lots of different types of birds. Megan is also using the True Wireless™ Accessories and is finding her life easier at work and in the pool.

Watch her story here.

Michael travels the world in sound

Your son, Michael, will never be able to hear, speak, or do the things a normal hearing person would do,” my parents were told. I was diagnosed as being profoundly deaf at the age of fifteen months. My world seemed as if it had come to a narrow passage with very limited opportunities. However, it was the beginning of something unforeseen and beyond normal. All future dreams and visions seemed shattered, but they were actually expanding to a whole new dimension a normal-hearing person would never experience.
I was the first child to receive the Cochlear™ Nucleus® 22 Implant in Dallas, Texas, USA at the age of two in 1991, and since then I have thrived in the hearing world thanks to a team of family members, audiologists, auditory-verbal therapists, and Cochlear. I have upgraded multiple times over the years. With each upgrade, I experienced new sounds and adventures. Cochlear technology enabled me to push myself to do more such as appreciate music, talk on the phone, make the high honor roll in school, graduate college, travel, kick start my career, and receive an MBA.
I will celebrate my 25 year anniversary with the Nucleus 22 Implant in June. It has been an incredible journey filled with many “a-ha” and “wow” moments. The very first sound processor I had was the Mini Speech Processor (MSP). It was considered “mini” because the previous generation sound processor (Wearable Speech Processor) was rather quite large by today’s standards. It had a bodyworn processor that rested on my hip and connected to a behind-the-ear microphone via a long cord that ran up from the waist to the ear. The behind-the-ear microphone was about the size of what the Nucleus 6 Sound Processor is today. Isn’t it amazing how far we have come? It took something as big as the size of today’s sound processor just for the microphone back in the day! I used this speech processor during my toddler years. It helped me discover the world of sound and begin my journey to listen and talk.
After the Mini Speech Processor, I upgraded to the Spectra 22 Speech Processor. It comprised of a bodyworn processor connecting to a behind-the-ear microphone via a long cord very much like the Mini Speech Processor. It was tough and withstood many of my crazy shenanigans as a young boy such as completely dropping my Spectra 22 Speech Processor in a Colorado mountain river, and it still worked! I had this speech processor the longest; it very much became a big part of my life. I depended on it, and it supported me like no other technological device. In a way, I grew up with this speech processor.
Right before I entered high school, I upgraded to one of my favorite sound processors, the ESPrit™ 3G Sound Processor. It was completely behind-the-ear, the first of its kind I got to experience. Long gone were the days of struggling to tuck in my shirt because the long cord that attached my behind-the-ear microphone to the bodyworn processor was placed underneath my shirt. This sound processor was much more discreet, which served me well as I was a bit more vain going into high school. I used this sound processor for seven years. It gave me so much more comfort and flexibility throughout my high school and college years. I could not have made it as well as I did without this high-performing sound processor.
Shortly after I started working for Cochlear in 2010, I was still using my ESPrit 3G Sound Processor. I loved this sound processor and felt no desire to upgrade. Plus, I was a bit nervous about the upgrade as I heard that it might be a challenging upgrade. Little did I know what I had in store. After much encouragement from my mentor and work leader, René, I tried the Freedom® Sound Processor upgrade. I couldn’t believe how well I could hear with this upgrade from the get-go and how many new sounds I could hear with it. It was like I had a hearing loss with my previous sound processor, and all of a sudden, I could hear so much more with the Freedom Sound Processor. The upgrade was nowhere near challenging to which to transition; I had absolutely nothing to worry about this upgrade. This sound processor was the first all digital sound processor with which I ever heard. My previous sound processors used analog processing technology. I could not believe the sounds I was picking up with this new sound processor. For example, I always could always subtly hear the fizzing out of a soda pop can with my previous sound processors. With the Freedom upgrade, I couldn’t believe how loud the fizzing was after opening the can. Not only that, the fizzing continued for many minutes afterwards–I had no idea! So I learned an important lesson here: Do not be afraid of upgrades as they bring about very exciting, new sounds and experiences.
Fast forward nearly five years, the Nucleus 6 for Nucleus 22 launched. Naturally, I had to upgrade to this sound processor immediately. One particular area that I struggled in was hearing in noisy environments. I got an all-new noise program with my Nucleus 6 Sound Processor, and I could not believe how well I could hear in noisy environments. Instantly, my confidence to join a lunch meeting or a dinner in a noisy café or restaurant skyrocketed. I no longer felt the sense of dread when I received an invitation.
Just recently, for the first time in my entire life, I heard in water with the Cochlear Nucleus Aqua+. Growing up, anytime I jumped into the pool, took swimming lessons, or vacationed at the beach, I always had to remove my external sound processor and returned to a silent world. Currently, I am doing a secondment at the global Cochlear headquarters in Sydney, Australia. One weekend, I took surfing lessons for the first time and used the Aqua+. I could hear the instructor who was behind me; this would have never happened had I not had the Aqua+. It was remarkable to hear the waves crashing and the birds chirping from above–all while in the water! This is something that I really wish I had growing up, but I am even more thankful to have it now.
One other thing that I treasure in my life is the gift of hearing music. There are very few things that I appreciate more than music. With the Nucleus 6 upgrade, I got the Cochlear Wireless Phone Clip and the Remote Assistant. The music is so clear through the Phone Clip. Best of all, there are no wires. I spend many hours cranking out reports and presentations at my desk. I simply place the Phone Clip next to my keyboard and jam to music all day long. It is pure bliss! When I am traveling, it can be awfully noisy on the plane. So I whip out my Remote Assistant, and I adjust the mixing ratio so that I can completely eliminate sound coming through the microphones and completely focus on the sounds streaming through the Phone Clip. It is like having the world’s best noise-cancelling headphones. Last but not least, the Nucleus 6 Sound Processor is the most comfortable and discreet sound processor I have ever owned. It is incredible.
After receiving the Cochlear Graeme Clark Scholarship, I worked as a summer marketing intern with Cochlear Americas based in Centennial, CO, USA, the very company responsible for enabling me to grow up in a world of sound. I am now a Marketing Manager where I have the honor and privilege to manage Nucleus Sound Processor upgrades, recipient communications and Cochlear Celebration events.

Hamish’s inspiring story

Hamish developed a significant hearing loss at just 15 months old, four month later he received his Cochlear™ implants, and life changed for Hamish and his family.

Upgraded to the Nucleus® 6 Sound Processor with access to Cochlear Wireless Accessories, Hamish has enjoyed using the wireless accessories in his active life. Especially playing soccer. Before his upgrade he struggled to hear his soccer coach over the other children on the field. Now with the Mini Microphone, Hamish says he is able to clearly hear instructions over everything else going on – and his skills are improving!

 

Amanda breaks her hearing record!

Hi everyone!

Cochlear Nucleus 6 Blog  It has been a while since my first blog post and so much has happened. I am especially excited to tell you about my recent upgrade to the Cochlear™ Nucleus® 6!

I am still adjusting but so far I really like them. The main difference is the SmartSound® iQ, which manages different types of sound automatically so you don’t have to worry about changing to a different program. The programs you have in older processors (i.e Everyday, Focus, Noise and Music) can now be all automated!

And another pretty cool thing is that it has wind reduction! It is perfect for where I live – Wellington, the windiest city in the Southern Hemisphere. I haven’t had a chance to experiment with it too much as it’s been winter and I haven’t been outside much. I’ll be sure to let you know when I do.

The first week after the upgrade, it felt like I wasn’t hearing a lot and I was missing background information, which was unnerving. All this is normal while you adjust, I have always been used to having background noise so having less of this now takes a bit of getting used to. I did notice, however that I could pick up speech much clearer and easier.

Last weekend I went out for brunch with a good friend of mine, usually I would have some trouble hearing in the café, but I didn’t. It was great! I was picking up on everything she said. Win 🙂

The Nucleus 6 also comes with optional wireless accessories. There is the mini microphone, a TV streamer and a Bluetooth phone clip.

I have the wireless mini mic and let me tell you – it’s amazing! It is so cool to finally not have to wear ‘special’ earphones or hooks when listening to music – this means when I am using the mic, all I need to do is activate streaming on the processor or Remote Assistant/Control and it’ll connect! I have total freedom moving around with no wires or external receivers; you just have to be within seven meters of the MiniMic.

I have tried placing the mic in front of the TV speakers and found the speech clearer; I have listened to music with it plugged into my phone or iPod and I loved it. I have yet to try it in formal situations but I have meetings at work coming up where I will try this, again I’ll keep you posted. Both the remote and the mini mic stays in my handbag all the time as it’s so easy to whip out when I need it. Cool eh?

The Nucleus 6 is a lot smaller than the Freedom® and slightly shorter than the Nucleus 5. I chose a brown processor to match my hair colour but you can also order coloured covers to snap on. I have the pink (this is Barbie pink, guys!), blue, grey smoke and black swirls. I’m going to customise a set to match my NZ kit so I’ll be sure to post this when it’s done!

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I’ll be back soon once I’ve tried out a few more features, but in the meantime if you have any questions, feel free to ask in the comments below.

Amanda 🙂

Keep that sound alive – it’s a family thing.

Being a mum of a deaf child you tend to look at hearing in a different way. I try to guess what type of hearing loss people might have, I also try to anticipate what the audiologist will say to Isaac. This is my way of learning to understand hearing loss and the affect on people. This also passes onto my parents as, hey, it’s my job to keep an eye on them too right?

Learning about hearing loss has caused me to be a “Google Queen” trying to learn as much as I can with both the audiology and technical side of hearing loss so I can make the best and the most informed choices for assisting Isaac. Recently we urged my mother to get her hearing tested, we felt her responses were not as reliable in noisy situations. After some coaxing she agreed- it ended up that she has some hearing issues. She has the same type of loss as Isaac (different underlying cause).

MelMcMullens mum

Coincidently, a cochlear implant for her may be an option in the future. That’s just fine with us…we know what to expect and she would do that in a heartbeat after seeing how amazingly Isaac has taken off with his implant.

I heard that keeping your speech and listening going, with a cochlear implant reduces your chance of dementia and keeps your brain alert and active, amazing hey!

If it’s good enough for Isaac to keep his hearing alive its good enough for us.. Oh and in the interim my mum is getting a hearing aid. We are keeping that sound going.

From Mel (Isaac’s Mum)

Cricket, hearing and hilarity with Lance Cairns

By the mid 1970’s I was playing cricket fulltime, whether it was 1st class representing New Zealand or playing as a club pro in the United Kingdom. Hearing problems were starting to arise but I wasn’t too concerned… After all, I was playing sport for a living and the hearing thing was not really a big issue.

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In the early days representing NZ, the match payments were shocking. Then Kerry Packer came on the scene and introduced the new game, 50 over cricket. He gave us coloured clothing to wear, we played with a white ball and half the game was played at night under lights. A brilliant change to sell to the public and boy, did they love it! Here in NZ the players soon became household names, especially with the stay at home housewives. They loved the idea they could switch the television on just after lunch and watch this new game. Lots of husbands would arrive home to no tea (dinner) on the table as the wife was too caught up in the game.

The match fees certainly made it worthwhile to be involved. Australia introduced a tri-series which in the early days involved Australia and New Zealand and one of the other test playing nations. This meant for a number of years we had to spend Christmas in Oz. One of our team priorities for this was to hold Christmas lunch where all the team members would receive a little gift. John Wright was always the MC and when your name was called you went up to the front and got your pressie. He would call my name out very softly, then again a little louder and the third time he would scream my name out as loud as he could. Up I go to get my gift and have to unwrap it in front of the guys – two very large plastic ears which of course I had to put on and wear them for the rest of the function. When we finished I had to hand my gift back in and I was given these ears for about 4 Christmases in a row…The boys found this pretty humorous, which I didn’t mind as it was just the boys having a bit of fun.

Lance Cairns- The-benson-hedges-world-series. Photo courtesy of Sports World Cards
Lance Cairns- The-benson-hedges-world-series. Photo courtesy of Sports World Cards

During this time the Oz and Kiwi boys got pretty close as we were playing against each other so often. Drinks in each other’s change rooms were compulsory after a match and the sessions we had in the Aussie’s room at the S.C.G. were legendary. Doug Walters who started out as a Rothmans representative and later became a Tooheys representative, installed a huge fridge on the back wall of the home dressing room at the S.C.G. which of course, was stocked with Tooheys products the following year and he had installed another huge fridge on the back wall. We always made sure the fridges were empty before we left the ground.

I had an interesting experience one time at the M.C.G. A part of the ground is called Bay 13 and this area attracts the more vocal patrons and maybe a few more ruffians who like to give the fielder near them a pretty torrid time vocally. Because of my hearing, I was always allocated this area to go and field in as they could scream blue murder at me and I wouldn’t take any notice… except once when I heard this female voice calling out “sign please!” I turned around to sign her book, but no book in hand… just her chest. Of course I signed it.

Cheers Lance.

Isabelle is loving life, and those in it.

Graeme Clark Scholarship winner, Isabelle on family and friends,

I would not be where I am without the amazing support of my family and friends. Growing up with a Cochlear™ implant became the norm for my older sister, my parents and myself. There were moments when my father forgot who was the deaf child in the family, picking up my sound processor, saying: “Whose is this?”

Having a Cochlear implant comes with the responsibility of remembering to take batteries everywhere. My family would always leave the house asking me the same question: “Do you have batteries with you?” I often remember to bring batteries with me, or may have spare ones in the car or my handbag, but there have been many occasions where I have forgotten them. This included Christmas Day, leaving me with no option but to not hear all day. I could not help myself but laugh. After all I just relaxed on a pool floaty in the water sunbaking in silence.

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Isabelle with her family – Isabelle on left.

I have the option to switch on and off my Cochlear implant, which is a great advantage for me, and not so much for my family… particularly for my sister. When my sister and I were in a fight, I would turn off my processor and just walk away so I do not have to listen to her angry voice. This made her furious. Or I would trick her, and act as if I have turned it off when really I haven’t. You could say I was quite a sneaky child. But, I don’t do this anymore.

Might be something I’ll do to my future husband though… watch out.

Even when travelling on the bus to work or uni, people would listen to music while I choose to listen to silence. It’s nice having a choice.

Growing up, I have made some wonderful friends who make me smile and laugh, and make me feel very comfortable with myself. They are very considerate by repeating if I hadn’t heard something said. They ensure that I am sitting on the right side of the table so my Cochlear implant is closest to them, allowing me to hear better. Even when walking, my best friend makes sure that she is on my left side, it has become such a habit for her that she even walks on the left side of her friends who have normal hearing.

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As my current sound processor (which is the Freedom®) is not waterproof, when I go to the beach I have it take it off. This is not an issue as luckily I have learnt to lip read. Last month when I was in the Caribbean Sea with my best friend, we had no trouble having a conversation in the water. But she says that she often forgot I couldn’t hear and continued talking to me when I wasn’t facing her or was underwater.

But yes, when I am at a restaurant or at a party, it can be difficult hearing conversation, and it can get frustrating. Although I think how blessed I am to have a Cochlear implant in the first place. I have definitely learnt that those who are willing to help you, are those who are worth having in your life. I do not surround myself with people who are not willing to help me. I am forever grateful to those who are part of my life.

On the road to the Paralympics

Hi, my name is Amanda Cameron and I have just celebrated 15 years with my first Cochlear™ implant. My second one is 5 1/2 years old and I love them both, I don’t know where I would be today without them.

I was born profoundly deaf, I was diagnosed with Usher Syndrome type 1 when I was a bit older, which means deafness and retinitis pigmentosa (slowly deteriorating vision). At the moment I have 20 degrees vision and it’s basically no peripheral vision and I see through a tunnel.

I got my first implant when I was 11. I remember the day of switch-on and it wasn’t a particularly happy day for me. I thought everything sounded awful and it was just a whole lot of beeping and everything sounding the same. However, the first morning with my processor on, I kept hearing these really annoying consistent sounds so I grumpily asked my parents “What is that noise?” They were really amazed and told me it was birds singing which I had never heard before.

It probably took a good few weeks to adjust to the new sounds but after then I was back to normal routine, except with better hearing. I went to mainstream school, continued in my ballet and occasionally went back up to the hearing clinic for re-mapping. It wasn’t always easy but it does get quicker and you learn lots – what used to be an hour and half session with the audiologist now only takes 20 minutes.

I finished school and made the big move down to Wellington to study Architecture. A few years later, I decided I wanted a second implant, reason being I wanted to hear more especially with my deteriorating vision. I thought one was great, but I wanted to be more independent and secure because I have no idea what the future holds for me. I was very fortunate to be able to go private this time, and went for a second implant.

The second time around wasn’t as easy, as I was transiting from no hearing to an implant, whereas the first time around, I wore hearing aids right up to the surgery. It’s still not as great as the first one but I have noticed a definite improvement in having two implants. I wouldn’t change it for anything now!

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I am even representing NZ in sport, and it wouldn’t be the case without my Cochlear™ implants. I race on a tandem bike under the blind/vision impaired category, with a sighted pilot, and communication between the pilot and myself (the stoker) is paramount for good results in training and racing.

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I was never very sporty growing up even though I was always involved in something, I did ballet for 10 years when I was young. I played team sport including netball, soccer, tennis and badminton before I gave it up due to lack of peripheral vision and then I just kept fit by running and occasionally swimming and gym work.

It wasn’t till nearly 2 years ago when I was watching Attitude TV (a documentary series every Sunday morning featuring disabled people and their lives) when I became really inspired by other disabled people in sport, one striking me in particular. That was Mary Fisher, a blind swimmer and a world champion.

It made me crave a challenge and something I could do for myself. I got in contact with Paralympics NZ, who introduced me to tandem cycling. At first I scoffed at the idea and thought the idea of me cycling was ridiculous. But I had asked for a challenge and I am not one to give up so here we go.

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I began a training programme, attended a camp and began competing nationally and internationally. I am not a natural at my sport or the best, but I train and work hard and today I’m in the Academy Squad. My pilot, Hannah and I are currently striving for Podium Squad as we continue our journey to Rio 2016.

Isaac’s ‘Silent Night’ turns around

So, who am I? Why am I so keen to tell the world about how a Cochlear™ Implant has changed what my family’s life could have been?

Let me tell you: I am Mel, a mum of four boys, all of them so beautiful and a gift to the world in their own ways.

My youngest son is profoundly deaf and that is where this story begins.

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Back in 2002, our family was completed with the arrival of our Isaac. He was perfect. He looked so much just like my other three sons. There was nothing spectacular about his arrival apart from the surprise of a fourth boy. He was a quieter baby, who wanted more cuddles and seemed to settle far more being with me, which I totally adored.

In this stage of our lives we owned a ’fine dining’ restaurant.  It was a noisy environment.  Two kitchens, five chefs and plenty of floor staff making it a busy place. There were no quiet spot in the building for a newborn baby.

Isaac slept while many loud bangs and crashes surrounded him. They should have disturbed him whilst he slept, but didn’t. Deep inside I knew there was something wrong, even after our health centre nurse had assured me Isaac was fine, just different to my other babies. I had that nagging feeling that haunted me.

A loud suction snapped off as I pulled the ducted vacuum hose off the port. It was so loud it startled me, but my precious little boy stayed sound asleep right beside me. That nagging feeling had surfaced to a point of truth for me in that moment.

Christmas Eve 2002 will stay embedded in my mind and heart forever. I can still feel those emotions well up when I think about that day. The sounds of Christmas carols wafted over the room as I nervously sat with my mother, and my baby son on my knee in a small waiting room in a nearby audiology clinic. In the testing room puppets turned in an abstract box as each beep sound filled the room. Louder and louder they got. My mum and I were given headphones to protect our hearing, my baby wasn’t. He was not bothered by the noises at all. A growing discomfort sat in my gut. I wanted to run and not face what I’d feared to be true. And it was confirmed. “Your son is profoundly deaf, he may need a cochlear implant”. The audiologist stated it in a monotone voice as if it was just a fact. He then dismissed himself, pointed to the reception desk and left for the office festive celebrations to finish off his day. Merry Christmas!

What is Christmas? In a nut-shell it’s noise, it’s songs, it’s family laughing over silly bon bon jokes – none  of that audible at all to my 7 month old baby. I wanted to scream to the world that it was indeed truly a ’Silent Night’ for us.

It was my worst Christmas ever! This is the time of year I’d normally anticipate for weeks ahead with child-like delight. I’d wake up early to beat the children, drinking the milk and eating the cookies left for Santa. I’d play ever so loudly The Wiggles’ ’Santa Claus is coming’ just to excite them and see their faces glow with pure joy.Not so that year.

February 2004, after much testing and a deep desire to have our child implanted, Isaac was given a date for his operation. He was the first to be implanted at the Royal  Children’s Hospital Melbourne. The wheels of life were about to turn.

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It was a beautiful warm, sunny day, fitting for the excitement we felt. The time had come with mixed emotions of anticipation and nerves. We placed a stuffed toy horse in Isaac’s arms as he was wheeled into the stark white operating theatre, the last attempt to make Isaac feel comforted.

“He’ll be ok. He’s in good hands,” I repeated to myself as the seemingly oversized doors closed and blocked the view to my baby being wheeled away.  He had so many in that room with him; doctors, nurses, surgeons. Being the first implanted at that hospital had attracted quite a following. The operation took over three hours. I can tell you there were plenty of cups of coffee drunk in that time. It felt like the longest wait ever!

Two weeks later, again I found myself in a familiar setting; in a room with puppets in abstract boxes.  This time it was a toucan swinging around as the beeps were presented. This time Isaac could hear them! This time it was a room of hope as I watched my little man’s face light up with delight. He could hear the same level as I could! he smiled, he giggled at each new beep, he loved to hear and wanted more and more. The Cochlear implant that sat on his little ear was the gift to his future, of sounds, of words. It was a gift of love to my boy. This time it was tears of overwhelming joy and thankfulness, not despair and shock!

Over the next six months Isaac learnt to speak over 100 words. He even said “mum” – my favourite word of all. He was growing and becoming so confident in his responses to others. Learning sound through him was amazing. It made me look at life in a new and simple way. Each sound had a place, a feeling and a reason. I’m thankful for that chance to discover life in language with Isaac.

Looking back at the contrast in emotions, I can honestly say my joy hasn’t wavered since the switch-on day. We dared to dream and hope. We strived to give Isaac the same in life as our other three sons. We were never let down.

Isaac is now 13 and attends a private school in Melbourne (he is in year 7). Both his primary and secondary education were/are in a non-hearing unit setting. He has caught up and exceeded the expectations of not only us, his parents, but also those of the schooling system. He’s addressed politicians, achieved high grades, sung at events, been in gifted programs, learnt musical instruments – but  most of all, he can communicate with anyone he chooses to and has choices in his life which were not possible before his implant.

Issac has achieved so much in his short life so far. Join me on our journey of Isaac’s little gains and big wins, each steps in life which are great gains.

As you can see I’m just a proud mum …